National action on endometriosis to help thousands of Australian women

We are pleased to reproduce in full, a press release from Greg Hunt MP Federal Minister for Health outlining the national action on endometriosis. 

The Turnbull Government will today release Australia’s first National Action Plan for Endometriosis to improve the quality of life of patients through better treatment, diagnosis, and aiming to ultimately find a cure.

The Plan outlines a new approach to improving awareness and understanding of endometriosis, speeding up diagnosis, and developing better diagnostic and treatment options.

Today I am pleased to announce that the Turnbull Government will invest a further $1.2 million to help implement the recommendations of the Plan, taking our investment in the National Action Plan for Endometriosis to $4.7 million.

Endometriosis is a chronic menstrual health disorder that affects around 700,000 Australian women and girls.

It often causes debilitating pain and organ damage, and can lead to mental health complications, social and economic stress and infertility.

Many have suffered in silence for far too long, enduring diagnostic delays of between seven and twelve years on average.

Patients have historically experienced poor clinical care, due to a low level of understanding of the condition, both amongst the public and the medical community.

The National Endometriosis Steering Group will oversee the implementation of the National Action Plan over the next five years, supported by our initial $1 million investment.

Members of the Steering Group include Dr Susan Evans, Janet Michelmore AO, Sylvia Freedman, Nola Marino MP, Jessica Taylor, Professor Peter Rogers, Professor Jason Abbott, and Professor Stephen Robson.

I am also pleased to announce that Jean Hailes for Women’s Health will receive $200,000 to roll out an online national awareness campaign during Women’s Health Week in September, to encourage women to visit their GP if they are experiencing symptoms of endometriosis.

Earlier this year, the Turnbull Government announced a $2.5 million grant program under the Medical Research Future Fund.

I am delighted to announce that these funds will be invested in establishing the National Endometriosis Clinical and Scientific Trials Network.

This means for the first time, patients will be able to take part in a coordinated national research platform for endometriosis, to develop better diagnostic options, better treatments, and work towards the development of a cure.

A further $1 million has already been committed to supporting GPs and other frontline health professionals through better access to educational resources about endometriosis, to help reduce diagnostic delay, and ensure that the right clinical care is provided to the right patients at the right time.

This will include the development of a short course in endometriosis for primary healthcare professionals.

I also look forward to future work with our medical colleges to develop an Australian-first clinical guideline for endometriosis, which will lay out best-practice care for patients.

The National Action Plan was developed through close consultations with patients, the Australian Coalition for Endometriosis, and Australia’s leading endometriosis clinicians and researchers.

The National Action Plan for Endometriosis is available here.

Press release date: 26 July 2018

Last updated: 26 July 2018